What NOT to say to someone with Thyroid Disease...
Get well soon.... thank you for your sentiments but Thyroid Disease which includes Thyroid Cancer is life long especially when you have had yours removed. This means a life sentence of medication and taking this particular medication is a constant balancing act. Remember that the thyroid regulates your metabolism, heart rate, blood pressure, body temperature and hormones. One little pill and its precise mg’s has to balance each of these and its not an easy process. I’ve been on the medication for about 10 days and even though I’m taking a very low dose to introduce it to my body I’m having constant low grade anxiety and by 4pm the leg and arm cramps that are similar to what I would think is what Restless Leg Syndrome feels like starts and lasts all night. This has been my worst nightmare coming true, I’m more sick now than what I was before and there is nothing I can do about it. So, get well soon.... soon could be a very long time.
Come on you can’t be that tired... I know I’ve been tired for years but I’ve always had the strength to push through. Now when I get tired there is a wall and I slam into it like a sliding glass door and I didn’t see the glass. When I get tired now I must stop immediately and there is no pushing through even for a few minutes. So tired.... oh my God you have no idea!
You need to exercise more or go on a diet... yeah, I’ll get right on that!
Your TSH is 1.8 and in range so you are healthy... my TSH (thyroid stimulating hormone) has been within range for years and look where I am today. TSH is produced by the pituitary gland and tells the thyroid gland to make and release the hormones thyroxine (T4) and triiodothyronine (T3). You also have to have your T4 and T3 tested to have an accurate read. High levels of T3 and T4 could mean Hyperthyroidism (overactive) and low levels could mean Hypothyroidism (underactive).
In Kundalini Yoga the pituitary gland is very important. Let me explain.
There are 84 meridian points on the roof of the mouth which the tongue stimulates as we chant Mantra. Each Mantra is chanted for a different effect whether it be for heart opening, prosperity, mental calming, mental stimulating, healing addictions, etc. When the tongue touches the meridian points in a particular sequence it vibrates the hypothalamus, pituitary and pineal glands in the brain, directly and immediately sending out a message to the heart/the brain of each of your trillion cells which then immediately begin to radiate and vibrate the message of the mantra you are chanting which in turn influences your overall glandular function, moods, emotions, behaviors and physical well being. I love Kundalini Yoga! Wahe Guru!
Here is a link to a yoga set for the Pituitary Gland http://www.pinklotus.org/-%20KY%20Kriya%20Pituitary%20Gland%20Series.htm and thank you to Sat Avtar Kaur and her brilliant website http://www.kundalini-yoga-info.com/
Don’t be so hormonal.... I have already apologized to my friends about this. I am not normally hormonal but without the hormone regulator I don’t know how I may react. I already cry often only because I’m so sensitive to others and situations. But if I fly off the handle for no reason at all just walk up to me and hug me as tight as you can until it passes. Please do this and forgive me for any out of line behaviour. You know it isn’t really me, its just the imbalance and I will do my best to control it. I’ve always been on a near exact 28 day cycle for the 33 years I’ve been menstruating. I’m also one of those anomolies who loves her period and the mystery of my body’s call to the pull of the moon. I hope this won’t change as a result of this surgery.
I know someone who had that and they're fine.... really? Are they really fine? When was the last time you sat down and had a real heart to heart with them on how they are doing? Perhaps today is the day to be a friend and go and spend some time with them and ask if you can do something for them because I promise you they are not FINE! Ask them what it is like regulating the medication and how their life has changed as a result of this. I promise you that your support will be heartfully received.
Your scar is so big!.... yes, I actually had a successful, intelligent woman in her 50’s say this to me the other day in front of others. Her next comment was ‘Did it spread?’ I was speechless and just wrapped my scarf a little tighter around my neck and choked back my tears. (JH ~ I’m sorry, please forgive me, thank you, Iove you.)
I’m a woman who has struggled with loving my body all my life. I’m one of those women who has had men (more than one or two) tell her that ‘if you just lost a little weight’. I even had a man suggest I get liposuction. So now I have this scar to deal with. I’m not in the category of other cancers where you can hide your scars under your clothes, my scar is front and center. I’ve been so afraid that I won’t be seen anymore and that people will only see my scar and this woman blurts this out to me. I was devastated. Sometimes its better to just say nothing at all. (Just so you know I do love my body today and all its curves. I love that I’m proportioned and that my jeans fit and that my riding chaps look hot! I love all my curves and I’m not just a little bit woman, I’m all woman!
My friend had her thyroid removed and she gained 300lbs.... well, let’s just pray that won’t be me and thanks for the encouraging words but have no fear I love food and nothing will stop me from eating even if I do reach 300lbs, just more of me to love right?!
Well, if you’re going to have cancer that’s the one to have.... yes it it true that Thyroid Cancer is treatable however it is treatable by not just removing the cancerous tumour but removing the entire thyroid gland which is very important to the overall function of the body. But just removing it doesn’t mean all is good. There is still daily medication and also, approximately 6 weeks after the thyroid has been removed then the person is recommended to take RadioActive Iodine (RAI) which is a form of radiation treatment taken orally. Weeks prior to taking RAI the patient must go on a very strict low iodine diet and then be scanned to determine how much RAI is to be given. During this time the thyroid medication must be stopped for a few weeks which means energy levels plummet only then to do the balancing act all over again when its time to restart the meds. Depending on the dosage some patients must be quarantined because they are literally radioactive. Even the clothes they wear during treatment must be burned because the natural body perspiration and other body discharges are radioactive and even the toilet must be flushed twice to make sure all the radioactive stuff goes down the drain. Pretty scary stuff if you ask me and no one wants cancer ever, treatable or not. I know I didn’t ask for this!
So what DO you say to someone with Thyroid Disease/Cancer.... I don’t have an exact answer. Maybe just think for a moment before you speak and drop into your heart. Whatever comes out of your mouth after that will be perfect because it will be coming from your heart not from a place of insensitivity. Be kind. Just be kind. Isn’t that what we all hope for in our communications?
This afternoon I’m going to sneak into a Thyroid Cancer symposium for professionals at the Shaw Center here in Edmonton. I’m going with my friend Maureen who is in town. We met when we were in Grade 3! Imagine that!
Today I will communicate from my heart and smile so all who I come into contact with will feel my sincere warmth and gratitude for all that I have in my life today especially for friendships that have lasted for close to 40 years. Yikes... am I really that old ~ LOL!

Good Morning Laara - Somehow I know today will be better than yesterday. please forgive those of us who are "clumsy" with our comments. While as you have pointed out, (and they sound really stupid here!)our comments are uneducated. We are fortunate NOT to have had to learn the depths of thyroid cancer before - this is why we are stupid. Our clumsy comments are loaded with love, and caring, and an emmense feeling of ineptness - as there seems we can do nothing but stand by. We know this is a struggle, and its not easy. We know of all of us, YOU are the one who has the strengthm and determination to overcome (yes, yet another!) this obstacle. We are also learning. Thankyou so much for this valuable lesson - we will all do better. Pleas forgive us, and try to find humour in our stupidity, knowing that it comes from a place of love.
ReplyDeleteEnjoy your time with Maureen and please post any valuable info you learn at the symposium.
love ya, Karen
Karen! I adore you! I always have... and for people's comments I do recognize that most come from a heartfelt place. I truly believe that all people are innately good. There are a few however who are just shockingly insensitive blunt. You know I have a wicked sense of humour and through all this there has been alot of laughter, it is the best medicine we have afterall! Much love to you and thank you so much! xo
ReplyDeleteDaily exercise helps me balance my hormones. It inspires me to continue doing my training sessions. Thanks to Nutrimeds I am able to live a normal life again.
ReplyDelete